Resources

Support Groups

Amyotrophic Lateral Sclerosis (ALS)

ALS A Life Story Foundation

Amyotrophic Lateral Sclerosis (ALS), also commonly known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that causes muscle weakness, paralysis, and ultimately, respiratory failure.

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Arthrogryposis

Arthrogryposis Multiplex Congenita Support, Inc (AMCSI)

AMCSI mission is to provide and encourage more understanding and mutual support among anyone affected with the diagnosis of arthrogryposis multiplex congenita (AMC). To create a higher standard of AMC awareness by means of conferences, meetings, and studies.

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Brachial Plexus Support

The United Brachial Plexus Network

The United Brachial Plexus Network strives to inform, support, and unite families and those concerned with brachial plexus injuries and their prevention worldwide

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Neuromuscular Diseases

MDA

Muscular dystrophy, ALS and related muscle-debilitating diseases take away physical strength, independence and life. Find out who gets these diseases, what causes them, what the symptoms and life expectancy are for people affected by them, and how MDA research is leading the way to treatments and cures.

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Muscular Dystrophy (MD)

Christopher & Dana Reeves Foundation

Muscular dystrophy (MD) refer to the group of genetic diseases characterized by progressive weakness and degeneration of the skeletal muscles that control movement.

There are many forms of muscular dystrophy, some noticeable at birth known as congenital muscular dystrophy, while other forms develop in adolescence. Regardless of the exact timing of onset, MS can lead to mobility impairment or even paralysis.


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Multiple Sclerosis (MS)

National Multiple Sclerosis Society

Multiple sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body.




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Spinal Cord Injury

United Spinal Cord Assoication

United Spinal Association is dedicated to enhancing the quality of life of all people living with a spinal cord injury or disease (SCI/D), and providing them and their loved ones, care providers and professionals with needed resources.


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Spinal Muscular Atrophy

Cure SMA

SMA is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants.

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Stroke

American Stroke Association

Stroke is a disease that affects the arteries leading to and within the brain. It is the No. 5 cause of death and a leading cause of disability in the United States.

A stroke occurs when a blood vessel that carries oxygen and nutrients to the brain is either blocked by a clot or bursts (or ruptures). When that happens, part of the brain cannot get the blood (and oxygen) it needs, so it and brain cells die.


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Medical Blogs

Congenital Hand and Arm Differences

Charles Goldfarb, MD, the author of this blog, is an orthopedic hand surgeon at Washington University in St. Louis specializing in congenital hand and upper extremity disorders. He practices at St Louis Childrens Hospital and Shriners Hospital for Children in St Louis, Missouri. This blog was created to demystify abnormalities of the hand and wrist that children may experience from the time of birth.

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Children's Hand and Upper Extremity Center of Philadelphia

Through the Shriners Hospital for Children, Dr. Scott H. Kozin and Dr. Dan A. Zlotolow are committed to providing state of the art free care to children from around the world, because all children deserve the best we can give them.

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